Monday, November 21, 2011

Praising God Through My "Dystonic Storm"

About eleven days ago I was admitted AGAIN into the hospital with what is called a Dystonic Storm.  My body resembled that of a circus contortionist and it happened all on it's own.  This has only happened to me a handful of times. Usually my Dystonia is isolated to my feet, hands, or neck, but this time it was a wave of pain like I have never experienced and it seemed like it lasted forever.  The Physicians all tell me there is nothing they can do to help me. I must go to a Research University Hospital...whaw...whaw...whaw.  That's what I literally heard because of being under the influence of  Dilaudid constantly.  What I did hear was " I Will Praise You Through This Storm", by Casting Crowns, through the earbuds of an ipod on repeat.  Through my Dystonic Storms, I was determined to praise Him who is able to keep me from falling.  Well after about a week in the hospital I was released with no answers, no help.  I was discouraged.  Even thought for a minute my bouts of Dystonia would some day become a fixed disability, I won't claim it!!!! I will not give in to this thorn in my side!

Today I awoke with a new vigor, I felt good mentally but my body was feeling years beyond.  As I waddled down the stairs to get my husband from the car, I noticed my dear neighbor on the ground.  I yelled to her to make sure she was okay and tried to get to her as quick as I could.  She's a wonderful woman, great mom, about the same age as me and she has Muscular Dystrophy.   She thought she was having a good day and attempted to get the mail, on the way back she fell.  God sent me down at just the right time.  I waved my husband over to come pick her up and we helped her to her home.  In her pain and misery, I could totally relate.  Although our diseases are different they are quite common.   As we hugged we also cried together.  I felt her pain, I knew she felt like a burden, a liability.  I know the shame she must of had as she laid on the sidewalk unable to move, her feet stiff and distorted.  I also cried because God sent her to me today, she was ministering to me.  There is always someone worse off then you, someone hurting more, needing more.  Today I feel God has called me to be a voice for the voiceless and advocate for patient's rights.  In my case it's Dystonia.  So I have decided to create a new blog real soon, dedicated to Dystonia.  For my Guest of the Nocturnal Baker fans, no worries. I will still update my blog and try to keep my content fresh and new.

Thanks for letting me share my journey with you, be blessed.


  1. Inda, that is a beautiful post! I'm so sorry for your struggles but I know God is using you in a mighty way! What a blessing that you and your neighbor could minister to each other!

  2. I love you daughter and I am encouraged by your faith and strength. You are a ministering voice among many. I know that God will use you greatly and be a testament to His Greatness and Love. Thank you for letting me a part of your journey in Christ. He is your Healer. May God continue to Bless you and prosper you in all that you do. May His covering be upon your household. May everything that comes to you be blessed in His name. You are a mighty woman of God. You are that Proverbs woman that cares for household and the needs of other. In Jesus name.. Mom :) Love ya!


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