About eleven days ago I was admitted AGAIN into the hospital with what is called a Dystonic Storm. My body resembled that of a circus contortionist and it happened all on it's own. This has only happened to me a handful of times. Usually my Dystonia is isolated to my feet, hands, or neck, but this time it was a wave of pain like I have never experienced and it seemed like it lasted forever. The Physicians all tell me there is nothing they can do to help me. I must go to a Research University Hospital...whaw...whaw...whaw. That's what I literally heard because of being under the influence of Dilaudid constantly. What I did hear was " I Will Praise You Through This Storm", by Casting Crowns, through the earbuds of an ipod on repeat. Through my Dystonic Storms, I was determined to praise Him who is able to keep me from falling. Well after about a week in the hospital I was released with no answers, no help. I was discouraged. Even thought for a minute my bouts of Dystonia would some day become a fixed disability, I won't claim it!!!! I will not give in to this thorn in my side!
Today I awoke with a new vigor, I felt good mentally but my body was feeling years beyond. As I waddled down the stairs to get my husband from the car, I noticed my dear neighbor on the ground. I yelled to her to make sure she was okay and tried to get to her as quick as I could. She's a wonderful woman, great mom, about the same age as me and she has Muscular Dystrophy. She thought she was having a good day and attempted to get the mail, on the way back she fell. God sent me down at just the right time. I waved my husband over to come pick her up and we helped her to her home. In her pain and misery, I could totally relate. Although our diseases are different they are quite common. As we hugged we also cried together. I felt her pain, I knew she felt like a burden, a liability. I know the shame she must of had as she laid on the sidewalk unable to move, her feet stiff and distorted. I also cried because God sent her to me today, she was ministering to me. There is always someone worse off then you, someone hurting more, needing more. Today I feel God has called me to be a voice for the voiceless and advocate for patient's rights. In my case it's Dystonia. So I have decided to create a new blog real soon, dedicated to Dystonia. For my Guest of the Nocturnal Baker fans, no worries. I will still update my blog and try to keep my content fresh and new.
Thanks for letting me share my journey with you, be blessed.