Wednesday, November 9, 2011
Well I have been gone for truly too long!!! We have so much to catch up with blogger friends!! Well as many of you may know I have Dystonia. The fact of the matter is my type of Dystonia is a "novel" mutant gene that has not been studied yet so my great Dr's don't know what the heck to do with me. Well lucky for me I know the Great Physician and that gives me comfort when my legs are contorting and writhing in pain. Thank God for his strength because without him I'm a twisted sister, literally. Since my wedding day on August 1, I have been hospitalized seven times. Last Monday I had my first round of botox injections in my legs. My neuro and I decided to get both of my legs done, 3 injections in my right leg and two in my left. The very next day I experienced a very agonizing day. I had a deep sharp pain in my left thigh muscle, followed by extremity weakness, cramping and contortions in my hands, feet, abdominal muscles, and neck. At this point I am waiting for the botox injections to relieve my feet dystonia, but along with my neuros am baffled at what to to do with the rest. I contemplate the thought daily of just giving up my meds, trying alternative therapy and literally run my pain away. Boy do I miss the euphoria of a good run. I need it, its my escape. Anyway just venting and getting you guys all caught up. I pray that my words can be a comfort to anyone with dystonia. I have never asked God why me, in fact I say why NOT me. I know I can bear this pain and I believe this battle will be won soon and it will be all to God's glory. On a more jovial note, my favorite time of the year is coming up and I can't wait to try new recipes, crafts and share my journey with all of you. Be blessed. Till Later friends!